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The EEG and a Hospital Stay
The EEG and a Hospital Stay
When a child is diagnosed with epilepsy, an EEG (electroencephalogram) is often one of the first tests families encounter — and it can feel overwhelming if you don't know what... Read more...
PADDAS and PUM1: Shining a Light on a Little-Known Genetic Disorder
PADDAS and PUM1: Shining a Light on a Little-Known Genetic Disorder
These Symptoms Make You Wonder Do you or a loved one have Seizures? Ataxia? Associated Developmental Delay? You could have a genetic disorder! In this article, we will discuss: our journey... Read more...
How Superhero Joey Helps Kids Understand Epilepsy
How Superhero Joey Helps Kids Understand Epilepsy
Superhero Joey and Superhero Joey: A New Beginning are children's books about epilepsy designed to help kids feel understood and brave. Learn why educators, librarians, and school counselors are adding... Read more...
Child diagnosed with epilepsy? Discover 5 essential things every parent should know, from coping with diagnosis to finding treatment and support.
5 Things I Wished I Would’ve Known as a New Epilepsy Mom
Child diagnosed with epilepsy?  A mom (with two) shares 5 things she wishes she knew--how to cope, find a new normal, and advocate for your child.  Read more...
Explaining Epilepsy to children in simple, age appropriate language
Explaining Epilepsy to children in simple, age appropriate language
Talking to children about epilepsy can feel overwhelming. You want to be honest — but not scary. Clear — but not too clinical. Informative — but not confusing. The good... Read more...